31/01/11

So far nothing significant is happening. I feel the same as I have done for 2 or 3 years. No extra wobbles, pain, sleeplessness, stiffness or anything. Maybe I'm cured!!!!!

I now wait, in trepidation, for the onset of more severe symptoms.

But so far, nothing untoward to report.

I had a walk today but felt a bit unfit, if you know what I mean. Not at the best of my physical form. Are you?

30/01/11

I feel rubbish today. I woke up 5 times last night, and had to move into the spare room to complete my sleep as I was disturbing the other half. I have woken up groggy and tired and simply down in the dumps. My shakes aren't particularly bad but I just feel slow and lethargic...I couldn't run a marathon today!

As from today I am off both the Mirapexin and Sinemet. I haven't started howling at the moon yet, but I'll tell you if I do.

Isn't it strange how variable PD is. Do you guys get this problem? Comments please

29/01/11

Another 'nothing to report' day. I feel standard, neither good nor bad. I'm a bit listless but that's not unusual. My shakes have not intensified with the lack of treatment nor has it gone away. Everything is as it was yesterday!

I know that these drugs need some time to kick in so I assume they take sometime to kick out, if you get my drift. In a couple of days I will have stopped all PD drugs except the NSAID I take at night.

Another thing, after reading all the nightmare stories of gambling, hypersexuality etc I am glad to report that these symptoms never effected me even when I was taking them, so I can't comment on that subject.

I didn't have a drink last night so I didn't have the hangover from hell like I did yesterday!!!

Anyone got any idea of when I can expect changes in how I feel? Days, weeks, months?

It was my Dad's 83rd birthday today. He seems to have more energy than I do.

Best wishes to all
Chris

28/01/11

Really knackered today. Only got to bed at 3am as I was out listening to some music. I had to go back to bed for 2 hours this morning as I was incapable of staying awake.....but this is ALL my fault!!

Otherwise I'm on the same dose as yesterday. I have no significant changes to report. My right hand shake was quite bad but, as usual, no worse than it can be.

I will go to bed early tonight, and see if there is any improvement on today.

I feel the 'punishment' I got from my PD from one night out was excessive. It was a hangover from hell even though I didn't have that much to drink.

I wonder if other people with PD get really bad hangovers? Comments please, I'd like to know I'm not the only one!!

Best wishes from a subdued Chris

27/01/11

Today I am on 2x2 100.25 Sinemet only. Last night I had quite a good nights sleep although I did wake up three times to 'move'. I find that waking up in pain is my major symptom of PD and it starts your day off badly. I have forgotten to state that I have started taking Naproxen 500mg (a NSAID anti inflammatory pain killer) at night to counteract this problem. It seems to work a bit I think, making my night a bit more pleasant.

I feel typically tired this morning, but no different than normally. My shakes in my right hand are constant but, again, no worse than usual. I am going to walk into town to relieve my stiffness but that is again normal for me.

So, even though I have only started this experiment for a few days, and haven't finished weaning myself off the meds, I feel like there has been no significant change to the way I feel. to date.

I wonder if anything will happen, and if so, when?

Thank you for making the effort to follow this post. I am finding it quite cathartic as it forces me to analyse how I feel, and gives me a record for posterity.

If you know of anyone interested in this blog please inform them

Cheers for today
Chris

26/01/11

Sorry that last post was so short but we had visitors.

To carry on, nothing has changed very much, I'm more tired than yesterday but less so than when I was taking Mirapexin. The shakes are around, but not anything abnormal for me and my PD.
If their was any deterioration it in the mobility of my left hand. I feel that my fine movements are less fine than normal but I have bad days and good days anyway.

All in all, no real change.
Tune in tomorrow folks!!!!


Spam

26/01/11

I thought no one was particularly interested, but it seems I was wrong, thank you

I'm completely off the Mirapexin now and have been for a little while. I am taking 2x 100/25 Sinemet twice a day rather than three time a day I was on.

I have had no real change to my well being. If anything I feel a bit less tired through the day and I think that directly related to stopping Mirapexin.

I had a nightmare last night involving a yacht and a fear of the sea, but after I woke up, I was OK.

Chris

End

I am aware that no one is interested, so I'll stop

22/01/11

No difference today, feel OK but not brill. Same dose as yesterday.
We had some friends over to dinner last night but I had to to bed a bit earlier than them as I 'conked out!'
I really want a quiet day and night,
No one from Parkinson's UK is looking at this blog, so I might stop soon...become a follower
Spam

21/01/11

No different. Woke up twice last night but that was to go to the loo as I had a few beers at a pub last night. I went to a music pub where I used to play guitar and sing. I've had to give up guitar but now I have a double bass, which I can still play.

If anything I feel a bit more alert today, but it's too easy to say if thats permanent.

Taking 6 x Sinemet 25/100 today but no Mirapexin

No real change yet

Someones given me a trombone, poor neighbours!

Stopping my PD Drugs

Hi all

My name is Chris, I have Parkinson's Disease, which is miserable but not fatal, and I have decided to stop taking the drugs I have been prescribed. This will be a record of what happens.

20/01/11

Right, today is my first day of this experiment. Today I will take 6 tablets of Sinemet 25mg /100mg. I take these at 10 am, 5pm and at bedtime. I also have been taking 0.52mg prolonged release Mirapexin 1 tab at night.but I will stop taking these from today. After a week of no Mirapexin I will reduce my Sinemet by half and then stop altogether after another week

I feel quite well today. I didn't sleep well as I woke twice with generalized body pain and cramps and it took me ages of tossing and turning to get back to sleep. My tremor is not too bad and I feel this will be a 'good day'. Like all PD patients I have good and bad days.


out of 5 (+++++)

Sleep ++
Tiredness ++
General Well Being +++
Shakes ++++

I'm not a gambler, and have no strange sexual or behavioural issues. I feel as good as can be.