06/03/11

Well, this blog has rather run its course now. There seems little point in carrying on now that I'm taking the meds again. It was an interesting time, one not to be repeated.

My conclusions are that I certainly do have PD, I feel crap with the tablets but crapper without. It also takes a month for things to change after you stop or start meds.

Thank you for following the blog. Best of luck everyone who paid attention. Hope you can sleep!!

Chris

05/03/11

Just exactly the same as yesterday. Maybe I'm having hallucinatory smelling issues because I have a strange smell in my nose. (It's NOT me!!!) My motor skills are markedly reduced today, but the shaking isn't too bad.

Tonight I have to go out to family meal.

04/03/11

I've had a 'middling' day. Nothing extraordinary to say. My movements are very slow and last night I tried to play guitar and my double bass for a few hours, demonstrating the lack of  'fine movement'. Today I wouldn't like to run a race, but I'm ok for daily life.

I'm still taking the 3x62.5 Sinemet.

See you all tomorrow!

03/03/11

Yesterday I managed to take 3 lots of 62.5 Sinemet during the course of the day. Now I know this is silly but I THINK I feel a bit better. I know this is highly unlikely as it takes weeks to work. However, I did sleep better but still feel tired this morning. I have also just noticed that it is still quite slow and hard work to type this post.

So, the experiment ends. I will carry on with the blog, to see how well I get to feel. I will see the Neurologist soon, but today I have to see my GP for some more tablets.

We shall see!

02/03/11 Part 2

Finally managed to get hold of the PD nurse who was polite and understanding. I told her of my decision and she immediately organized for me to do 1 week of 3x62 Sinemet and then up it to 3x125.

It seems that there were notes telling her what to do when I came crawling back to the fold! They were expecting it!

So, I start on the drugs again albeit this time without the Mirapexin. I don't know if it's worthwhile keeping on with the blog.  Might see how long it takes for any improvement. What do you think?

I think it took a month for the meds to clear my system, leaving the disease raw and in full force. I now know what it's like to have PD and have no drugs. Not nice!

Do you think I should carry on with the blog?

I'd like to thank the PD nurses, the neuro and his team and loads of other people

Best wishes
Chris

02/03/11

I'm tired, knackered, exhausted, miserable. shaky, depressed and definitely not happy. My movement skills are not good and I am having trouble typing this post. There is no way I could work at the moment.

I NEED to contact the PD nurse today, to get back on the straight and narrow with something to counteract this feeling.

Last night I lay in bed, awake for the fourth time, and had a little cry! How sad am I?

At least I know what I feel like when I come off the meds. I will not try this again and might print out this blog just to remind myself.

God, I hate PD!

01/03/11

Right, that's it!

Today I made decision to back on the meds. Last night was intolerable. I am so sore and today I was so tired I had to go to bed twice. My motor skills are affected and I'm much slower than I was. Shaking is not too bad.

I tried to contact PD Nurse today but couldn't get through. Will do it tomorrow.

I'm not happy but I understand a lot more. Have to play bridge tonight with some dear friends. I'll try and perk up.

Chris